Rett Disorder (syndrome) Links

International Rett syndrome Assn Website:
As the most comprehensive worldwide organisation dedicated to Rett syndrome, the International Rett syndrome Association proudly continues its nineteenth year providing important programs and information.

Our Rett syndrome Website:
"I am the mother of a beautiful 13-year-old girl named Claire who may have a mild variant form of Rett syndrome, and of an equally beautiful 12-year-old girl named Jill who does not. I spent five years organising and maintaining an Indiana family support group, served for three years as a Regional Representative for the International Rett syndrome Association, and have maintained this site since 1995. I hope you find this site useful."